x*5
2 楼
runninggirl [1楼]
1/7/2013 3:38:00 AM 短信 邮件 回复
我朋友女儿三岁，得了朗格汉斯细胞组织细胞增生这个病，很罕见！ 想问问美国这边
有什么先进的办法治疗！ 跪谢！
红豆酒酿 [2楼]
1/7/2013 3:38:00 AM 短信 邮件 回复
1/7/2013 3:38:00 AM 短信 邮件 回复
我朋友女儿三岁，得了朗格汉斯细胞组织细胞增生这个病，很罕见！ 想问问美国这边
有什么先进的办法治疗！ 跪谢！
红豆酒酿 [2楼]
1/7/2013 3:38:00 AM 短信 邮件 回复
a*h
3 楼
有个代理让我出票，等我准备转钱的时候，又说机票价格看错了，转眼就长了2000RMB.
可查了他家的REVIEW，都说好，不知怎么回事。
大家都用IFLYCHINA.NET吗？有没有遇到类似的情况? 真希望有个LIST上面列好信得过
的AGENT.
可查了他家的REVIEW，都说好，不知怎么回事。
大家都用IFLYCHINA.NET吗？有没有遇到类似的情况? 真希望有个LIST上面列好信得过
的AGENT.
d*y
4 楼
Anyone who has it? Please let me know.
l********[email protected]
l********[email protected]
a*d
5 楼
介于之前只网申不内推连电面都拿不到的教训，请问版上在Fairchild工作的兄弟姐妹
能否内推一下楼主——这个职位和我的背景80% match，我有信心至少拿到on site
interview.
能否内推一下楼主——这个职位和我的背景80% match，我有信心至少拿到on site
interview.
y*f
6 楼
估值那么高，傻子才追高。
【在 b**j 的大作中提到】
: ipo的最低纪录?
【在 b**j 的大作中提到】
: ipo的最低纪录?
a*2
7 楼
I am sorry for this unfortunate girl. It is a very rare disease, I have
never seen such patients and I believe probably very few physicians have
experience On this disease. Here is what I have known from literature review
and hopefully it helps. To make it short,I will go straight to the point.
1. It usually is a multi system disease in a child younger than 3, and a
single system disease in adults and older children. So I assume she has a
multi system disease.
2. Per recommendation, prior to treatment, she needs to get many tests done
for evaluation, including but not limited to bone marrow biopsy, imaging
studies,etc.
3. If it is really multi system, induction therapy with prednisone and
vinblastine for 6 weeks, then based on the response and risk organ
involvement (lymph nodes, bone marrow, liver, spleen, etc), 12 month of
therapy including those two plus mercaptpurine. If no response from the
first 6 weeks therapy, may repeat it.
Overall, it's rare, even the treatments are all expert opinion, not
evidence based. So, get a very knowledgeable expert who is active in
academia instead of just a regular doctor may help.
Good luck!
never seen such patients and I believe probably very few physicians have
experience On this disease. Here is what I have known from literature review
and hopefully it helps. To make it short,I will go straight to the point.
1. It usually is a multi system disease in a child younger than 3, and a
single system disease in adults and older children. So I assume she has a
multi system disease.
2. Per recommendation, prior to treatment, she needs to get many tests done
for evaluation, including but not limited to bone marrow biopsy, imaging
studies,etc.
3. If it is really multi system, induction therapy with prednisone and
vinblastine for 6 weeks, then based on the response and risk organ
involvement (lymph nodes, bone marrow, liver, spleen, etc), 12 month of
therapy including those two plus mercaptpurine. If no response from the
first 6 weeks therapy, may repeat it.
Overall, it's rare, even the treatments are all expert opinion, not
evidence based. So, get a very knowledgeable expert who is active in
academia instead of just a regular doctor may help.
Good luck!
h*r
8 楼
你用的哪一家？我刚在iflychina买的机票服务和效率都很好。整个过程都用msn和
email上完成。我用western union付款，$14手续费，15分钟可以确认出票。
email上完成。我用western union付款，$14手续费，15分钟可以确认出票。
m*i
9 楼
Thank you very much!
I just got a report which the girl's mom emailed me yesterday night.
I found out she is only one and half years old.
Hope that anyone can help her to go though this hardness!
I just got a report which the girl's mom emailed me yesterday night.
I found out she is only one and half years old.
Hope that anyone can help her to go though this hardness!
s*7
10 楼
请楼主查看站内邮箱 祝好！
k*g
11 楼
how much did other agents offer you?
if other agents' price is about 2k higher than his, then he/she made a
mistake.
you can never get a price 2k lower than all other agents. do not take
chances.
2000RMB.
【在 a****h 的大作中提到】
: 有个代理让我出票，等我准备转钱的时候，又说机票价格看错了，转眼就长了2000RMB.
: 可查了他家的REVIEW，都说好，不知怎么回事。
: 大家都用IFLYCHINA.NET吗？有没有遇到类似的情况? 真希望有个LIST上面列好信得过
: 的AGENT.
if other agents' price is about 2k higher than his, then he/she made a
mistake.
you can never get a price 2k lower than all other agents. do not take
chances.
2000RMB.
【在 a****h 的大作中提到】
: 有个代理让我出票，等我准备转钱的时候，又说机票价格看错了，转眼就长了2000RMB.
: 可查了他家的REVIEW，都说好，不知怎么回事。
: 大家都用IFLYCHINA.NET吗？有没有遇到类似的情况? 真希望有个LIST上面列好信得过
: 的AGENT.
a*h
12 楼
有的代理的价格跟他差不了几百，只是他家最低。
最后要交钱的时候他说把票价看错了，把单程票价看成双程的了。
在出票之前，我msn和电话都用了，核实了不下3次。 所以这个理由明显在蒙我。
【在 k**g 的大作中提到】
: how much did other agents offer you?
: if other agents' price is about 2k higher than his, then he/she made a
: mistake.
: you can never get a price 2k lower than all other agents. do not take
: chances.
:
: 2000RMB.
最后要交钱的时候他说把票价看错了，把单程票价看成双程的了。
在出票之前，我msn和电话都用了，核实了不下3次。 所以这个理由明显在蒙我。
【在 k**g 的大作中提到】
: how much did other agents offer you?
: if other agents' price is about 2k higher than his, then he/she made a
: mistake.
: you can never get a price 2k lower than all other agents. do not take
: chances.
:
: 2000RMB.
相关阅读
Qualcomm onsite 面试求助问问大家长期在RF lab里面工作也什么危害Bioinformatics是不是个好坑?Bill3012一过是不是想读phd的人更少了？有没有一年的ee master[合集] [ITExpress] 码农工资涨的原因主要是某些公司太挣钱了frequency synthesizer里的PLL和clock recovery里的PLL相比电力电子类的工作机会Quantum Information方向有工作可找么？杭州师范大学数字媒体与人机交互研究中心诚聘海内外高层次人才招聘：工程类， 3个位子 (转载)请教个CCD的问题glassdoor上的review靠谱吗手表ANDROID上来碰碰运气，有GGJJ会用Zemax么？CS转EE一般digital filter 的quantization noise怎么算?big data forum is running (转载)工作方向求建议请教个统计问题